At the age of 36, I was diagnosed with ALS, amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease. What started as a page on Facebook, eventually developed into this blog, at my daughter’s request.
Now, 10 years later, I am surprised to be alive. Not only that, but I am thriving. I have three children. All of them are in their 20’s and though I have had a tracheostomy, and I can’t move anything except my head, they have settled into “this is our life now.” They know what I can and can’t do, and we live our lives accordingly.
So, why do I call my site “Things I Want Your Heart To Know?” Because my three darlings need to know what is in my heart; and I wish for them to carry my love for them in their own.
Things I Want Your Heart To Know 
Looking forward to more posts on your blog!! So happy you’re doing this 🙂
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Thanks, Katrina! I appreciate that!
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I love this idea. An inspirational, positive blog is what everyone needs in these trying times. Ready to sit back and enjoy your words of wisdom.. I love you ‘Jenny Jones’. ❤
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Thank you, Sherry! Love you, too.
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So glad you are writing again. You’ve been doing it, and doing it well, since I have known you.
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Thank you, Val! Your support has meant a lot to me!
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Yay! Following and looking forward to hearing from you each week!
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Yay!! I’m now following and am so happy to see this and look forward to hearing from you!
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I’m so happy that you are able to blog here! We’ve talked about your writing for years. And now you are doing it! SSOO proud of you ❤️
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Thank you, Tonya! It has been a long time. Thanks to you, I’m heading in the right direction. Remember when I had resigned myself to die? That was many years ago.
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Yes! You are SSOO strong and I’m so proud of you! Continue to be a light for the world.
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I will do my very best.:) The Light has saved this sinner; I would do anything for Him.
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Hello, please check my WordPress.com website – I have just finished that. It is website describing ALS experimental theory. It may look little bit weird but it has lots of important details and scientific information. I tried to write it for people like you. If you could find any relevancy with your case, I would be happy if you can provide feedback via your family etc. Also I would like to further help you, there can be a way. Wishing you all the best, lot of energy and indomitable spirit!
https://alsexperimentaltheory.com
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Thank you and welcome! I will check out your blog … I’m intrigued!
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mrunderhillfromshire, I’ve checked out your site twice, but I can’t find where I can follow you or leave a message. I love your site!
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Hello Jennifer! I have turned off comments as I did not want spam or typical negative comments which could discourage others. But I can be contacted using the contact form or e-mail directly.
Contact form + e-mail:
https://chronicdiseasesdemystified.com/contact/
Following the site should be possible from the WordPress Reader page, but this link could help when you are looged as WordPress.com user:
https://wordpress.com/read/feeds/112088457
New posts to be published very soon, hopefully today.
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Thank you, mrunderhillfromshire! I’ll be sure to contact you if I have questions
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