How I Told My Children My Diagnosis of ALS

It was a very sad day. My children … did they have to know right now? They had seen me lose my independence; they deserved to know why. I owed them that. Besides, I didn’t know how much longer I’d be Heaven-bound. I needed them to know that we’ll never take another day for granted.

So, we all sat at the kitchen table, including my now late husband, and I told them, “I have news. You all know I had an appointment with my doctor today, and he gave me terrible news. I have a disease that will kill me, but slowly.” We all broke down and sobbed. I asked my children and my husband to hug me every day and I made sure I told all of them that I loved them every single day; I still do. Now I include my two daughters-in-law and my sweet grandson.

After the crying was over, we hugged, and I asked them if they had any questions. They all said no. I, then, let them go back to their games. I, to this day, am sure I did the right thing in telling my children, but I still wish away that horrible day.



  1. Oh wow Jen. How old were they when you shared?

    Liked by 1 person

    1. They were 10, 12, and 14. Hard enough ages before learning their mom is going to die. Of course, at that time, we didn’t know how long I’d live.


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