A Hole

Please let me explain: I have a hole in my neck due to ALS.

Once upon a time I was overweight. Very overweight. I’m talking 300 pounds. ALS changed me in so many ways, but weight loss was critical. It was important for my nurses to turn me for a bed bath, it was crucial for my health, and necessary for my heart.

Enter: ALS. I was some what healthy when the symptoms started. Eventually, It got harder to move. One day, I was sent to the hospital for pneumonia. I had to be put on a ventilator. As my pneumonia cleared up, I was apparently visited by my doctor and he asked me if I wanted a tracheostomy, but I don’t remember any of this. I must’ve said yes because the next time I woke up, I had tubing coming out of my neck, and a feeding tube on my left side. Had I been awake when the doctor asked me would like a tracheostomy, I would have told him absolutely NO!! I could never speak or eat again. For my family and friends, on my laptop, I left two or three videos with me talking.

Now, about that hole, from not being able to eat whatever I want (I receive food and medications through the feeding tube) I began to lose weight. As I lost fat, my neck lost weight, too. Now, we come to thick of the matter: The infamous hole; the bane of my life. This hole came quickly. One day when I being given chicken broth (I can still drink), the fluid began to flow out of my neck! I was really surprised and, later, upset. Those were the end of my broth days. It was only the hot drinks and soup that exits my body via my neck. It was the cold drinks that went directly into my stomach.

My doctor is trying to close it up. Yesterday, he put a specialized tape on the hole, and you know I had to test it! I had to have my chicken broth for the first time in a year! It was so good, and it didn’t leak.

Mark 11:22 – And Jesus answering saith unto them, Have faith in God. (KJV)