A Hole

Please let me explain: I have a hole in my neck due to ALS.

Once upon a time I was overweight. Very overweight. I’m talking 300 pounds. ALS changed me in so many ways, but weight loss was critical. It was important for my nurses to turn me for a bed bath, it was crucial for my health, and necessary for my heart.

Enter: ALS. I was some what healthy when the symptoms started. Eventually, It got harder to move. One day, I was sent to the hospital for pneumonia. I had to be put on a ventilator. As my pneumonia cleared up, I was apparently visited by my doctor and he asked me if I wanted a tracheostomy, but I don’t remember any of this. I must’ve said yes because the next time I woke up, I had tubing coming out of my neck, and a feeding tube on my left side. Had I been awake when the doctor asked me would like a tracheostomy, I would have told him absolutely NO!! I could never speak or eat again. For my family and friends, on my laptop, I left two or three videos with me talking.

Now, about that hole, from not being able to eat whatever I want (I receive food and medications through the feeding tube) I began to lose weight. As I lost fat, my neck lost weight, too. Now, we come to thick of the matter: The infamous hole; the bane of my life. This hole came quickly. One day when I being given chicken broth (I can still drink), the fluid began to flow out of my neck! I was really surprised and, later, upset. Those were the end of my broth days. It was only the hot drinks and soup that exits my body via my neck. It was the cold drinks that went directly into my stomach.

My doctor is trying to close it up. Yesterday, he put a specialized tape on the hole, and you know I had to test it! I had to have my chicken broth for the first time in a year! It was so good, and it didn’t leak.

Mark 11:22 – And Jesus answering saith unto them, Have faith in God. (KJV)



  1. Sadie says:

    You are so amazing Jenn, you made me feel so good about you and your chicken broth. I think I could taste it as you said how good it was. Simply Amazing. Love ya Jenn

    Liked by 1 person

    1. Thank you very much! I love you, too. ❤


  2. Jim Cowgill says:

    What a nice treat! I do miss the joy of food!

    Liked by 1 person

    1. How do you keep your mouth moist? Are you able to drink also?


  3. C Barry says:

    This is encouraging Jennifer. I care for my son as he has had a trach since he was 8 years old, so I know your struggles You’re in my prayers.

    Liked by 1 person

  4. C Barry says:

    I am encouraged for you. Being that I cared for my son who has had a trach since he was 8 years old, I know your challenges. You are in my prayers.

    Liked by 1 person

  5. Frances Penick, DC says:

    Hi Jennifer, Your writings are beautiful, so sweet just like you. I think of you and your family and keep you in prayer. Jenn, God is using you and your faith in Him is unwavering, Job Chapter 1.
    God bless you, Alice and your family. Pray for your children and their salvation. Share the Gospel with them. John 3:16. Your life and story are a living testimony for them.
    Love to you,
    Dr. Frances Penick
    Phippians 1:6

    Liked by 1 person

    1. Thank you, Dr Penick! And thank you for the Bible verses! Indeed, I will share them. I think about Job a lot. I miss you. I’m happy you’re following my blog. Thank you.


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