Things I Want Your Heart To Know

At the age of 36, I was diagnosed with ALS, amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease. What started as a page on Facebook, eventually developed into this blog, at my daughter’s request.

Now, 10 years later, I am surprised to be alive. Not only that, but I am thriving. I have three children. All of them are in their 20’s and though I have had a tracheostomy, and I can’t move anything except my head, they have settled into “this is our life now.” They know what I can and can’t do, and we live our lives accordingly.

So, why do I call my site “Things I Want Your Heart To Know?” Because my three darlings need to know what is in my heart; and I wish for them to carry my love for them in their own.