Living with Menopause and ALS

If you are celebrating the time of life called menopause *and* you have ALS, you’ve received a double whammy. The good news is that your bleeding will end. However, on the positive side, that’s about it.

I was blessed to have had a hysterosalpingectomy (the removal of my uterus and fallopian tubes), so I haven’t bled for several years. Which was good for me, but excellent for my, then, caregivers. Although that was the only blessing I’ve seen in my travels through menopause, it didn’t truly hit me until near the end of hot weather in our region.

That’s the reason I was on leave of absence, self-imposed. Towards, the end of summer, my hot flashes ganged up on me and really beat me up. For those of you who haven’t felt the wrath of a true hot flash, let me tell you what it’s like: you burn from inside. There’s no way I know to cool the burn. That’s wherein my problem laid. I was exhausted: I couldn’t sleep, which caused me to sleep all day, which further messed up my sleeping habits. You see, my hot flashes happen around 9pm. Then, I fall asleep comfortably, with my fans on and no sheets or blankets. Of course, then I wake up freezing, but unable, due to ALS, to cover myself. I try not to wake up my caregiver, so one night I tried to sleep through the cold.

Tonight, I’m trying a pharmacy-recommended supplement for menopause. Do you have any recommendations?

Psalm 41:3 – The LORD will strengthen him upon the bed of languishing: thou wilt make all his bed in his sickness. (KJV)



  1. Barbara S says:

    Personally, I would not consider pharmaceutical or surgical intervention unless my life depended on them – but I am not in your situation. Are there any AI or IT means of turning off the fan/get you warm/cold as needed available to you? If not, I’d say a prayer for them (and all care givers and women going through the menopause) and still wake the care giver. Rest well.

    Liked by 1 person

    1. Normally, I would agree with you. ALS is the key here. I’m now a quadriplegic, I can’t cover myself when the hot flash is over; I either wake my caregiver or freeze. I took the pill last night and it worked! It was the first time when I could cover up at night.

      Liked by 1 person

    2. Currently, those are not available to me. However, my case manager is working on it.

      Liked by 1 person

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