I really don’t mind having ALS, but would I change it if I could? Absolutely! Until God heals me, and I don’t know if it will be in this life or the next, I’m living in the slow lane.
Life with ALS means perpetual slow motion. I type sloooowlyyyy because I have to eye each letter individually. I have to wait for someone to give me a drink. Yes, although I’ve had a tracheostomy, I can still drink. I loooove Dunkin Donuts blueberry iced tea. It’s so refreshing. My friend, Rise, makes me homemade herbal iced tea, which is muy delicioso! I have to wait patiently for my feeding through my G-tube, because it runs throughout the night. I have to be patient with everything.
Except for the past week. My mother, who, if you follow this blog then you already know, is my primary caregiver. However, she has been in the hospital for the past seven days. My darling and loving, younger sisters, Cathy and Cindy, took over right away. They scheduled someone to be with me 24/7. They would grind my pills for the day and night, so certain people could give me my medications throughout the day and into the night. They and Mom flew my son, Danny, in from Florida, both to help and so we could spend time together before he left for boot camp. My niece, Missy, helped out too.
Mom came home from the hospital, and for a couple of days Cindy, Cathy, and Danny continued to help with my care, while allowing Mom to heal. Then Danny flew home and it was just me and Mom. I praise God for Mom every day; and for the family who helped in our time of need.
Luke 10: 33 – And a certain Samaritan, as he journeyed, came to where he was: and when he saw him, he had compassion on him. (KJV)